I Lied and said I was Ok.

If I ever let you think this was easy, I lied.

If you look at me and think I won the war against depression, I lied.

If I gave you the impression that I’m ok, then I said it wrong. Because every morning anxiety still pries my eyes open, while depression wants them to close.

Walking into any room, any time makes my heart thud so hard I want to turn and run. It does not matter if that room is filled with loved ones or strangers. I want to run away, and I’ll feel good doing it. I like it better when I’m on my own, but I hate feeling alone. I need the people in my life so much that if they realized exactly how much, it would shock them. The people I love are my anchor. They keep me here. They make me want to stay. So if I tell you I can do this on my own, I’m lying.

BPD still wrestles with me, every day is hard. If you think I’m not holding a clamped hand over its mouth, just to hear you speak, then I’m telling it wrong. I’m straining against the claws of a monster just to make it through the day. Some days I lose. Some days it forces me to watch the world pass like everyone got a pretty invitation to stand in the sunshine, while I’m stuck behind the glass and can’t feel it’s warmth.

Some days are good days. I’m starting to be able to string more than one together at a time. I was starting to rock through an entire week…

Then Fibro came along to add her 5 cents worth to the whole mess. She is the fiercest dictator I’ve washed up against so far. She tortures so invisibly that no one can see the scars. She’s an expert in making you forget she’s got her chains around me every minute. She hides in plain sight. She sees my good days and she laughs while she takes my feet from under me.

I didn’t chose to fight these battles. I’m no angel through it all. I can be so cruel it would suck your breath out. I’m so angry I’ll scream at the sky when I run out of things to be mad about. Resentment is my poison. It shows on my face, in the holes punched through plaster, in the burned bridges I leave in my wake. It could be so much fucking worse, but that doesn’t help me on the days I want to bash my head against a wall just to make it all stop.

The damndest thing keeps happening though. I keep feeling my lips curling up at the corners, my feet keep tapping, my heart bangs and I rise again. I tell my wrong brain to shut the fuck up and carry on. I’m learning to walk without limping as Fibro rattles through my central nervous system. I tell depression to shove it, even when anxiety puts a tremor in my voice. I turn the key in the ignition with shaking hands. I keep on going.

Recovery looks different for everyone. And it’s not fixed. It changes as I do. It’s a god damned bloody spectrum, and I’ve learned to be ok with that. But if I ever told you I was ok, that it was easy, then I bloody lied. I didn’t tell my story right.

I don’t want anyone to stumble across my blog and go well look at that, we can be fixed. Because we can’t. But we CAN manage life with all this nonsense. A good life even. I can never go back to the person I was ‘before’. I can be happy. I’m facing forward with anticipation for the first time in years. But let’s none of us pretend ‘happy’ is an attainable, fixed state. Cos that simply isn’t how life works. Adjust expectations, get comfy with the new version, make peace with it. When you look at me, know how much I’ve had to fight just to be stood there, looking right back at you.

My smile is real. That part I never lied about. This world might force me to my knees more often than I’d like, but I still have no poker face. The laugh is honest, the grin pure me. My strongest feature isn’t something I expected. I thought my weapon would be humour. It’s not. The force that keeps me going is pure, bull headed stubbornness. I’m a sore loser, so whenever my ailments think they’ve got me, I’ll up-end the game board right in their face and walk on.

Every time something comes along and tells me it’s going to take something away from me, I get up and fight to take it back. I’m that plucky little kid in the school yard. You’re watching her drag herself up off the gravel, nose bleeding, to turn around and spit on her bullies. Just when you think she hasn’t got it in her, she throws sand in their eyes and runs away. I didn’t know I had this much fight in me. I’m not a brave person. I fold like a piece of paper. I hate confrontation. And it’s not because I don’t want to argue over my change, or send a crappy meal back to the chef. It’s because I’m already tired of fighting.

The point of all this work, this endless battle? I found something to fight for. I didn’t know that. I thought I had nothing left to lose. Apparently even in my rawest, most flawed moments, I won’t lose my grip on the world. I lift my bowed head, scream FUCK YOU at roaring volumes and I stay. Every blow I expect to be the last straw… somehow isn’t.

This is mine. My ruined mind and broken body. It’s Mine. This life I live is Mine. The things I seek are Mine. The people I love are somehow Mine too. So maybe I’m not that brave little girl wrestling with her bullies. Maybe I’ve had enough. Maybe I’m also that stubborn, tantrum chucking little shit in the supermarket. Jumping up and down, turning heads, shamelessly screaming MINE, MINE, MINE!

So yeah, I lied. I let you think I wasn’t completely broken by all of this. I showed you the days I found my reason to stay alive, and I hid under the covers on the days when I couldn’t. Some days I rally do want it all to stop.

And yet.

The world keeps spinning, and I keep spinning with it. I will fight, fall down, get up and do it all again. One day if you look over your shoulder and I’m not there, at least you will know that I never give up. I gave until I had nothing left. I fought for every day I had here. I tried.

Stay weird peeps, stay here.

X Bon

Get up girl

So I had a massively awesome weekend.

A friend was flying to Sydney, stopping off in Orange for fuel. And he offered us a lift. Do we want to scoop up the kids and zip off to Orange to visit the fam? Um, yes obviously let’s do that!

It was very very worth it. My first time in a small plane and all the awesomeness that is flying at 400 k’s, 10,000 feet up. You feel every wing shift and can see the ground the whole time – AMAZING!

Spent time with cousins I hardly get to see, the kids had a ball and I got plenty of bubba cuddles in. I am one happy lady.

Downside of awesomeness? My body will always ask me to pay for it. I have to learn to accept the pay off for doing anything that uses a lot of brain power and physical doing.

Today my eyes won’t work properly, because like all my other muscles they are freakin tired. Imagine that all your muscles, nerves and even your skin were just fucking done with today. Now tell yourself to get up and go. You’re basically suffering from body wide, intense flu symptoms and you’ve just told the old body unit that it needs to put in a full day at Uni today. Body and mind are gonna have an argument about that for sure.

I know I’ll pay for it later. I know all the self care options are sitting at home in a tool box I rejected today. I know I’m facing an 8 hour day armed with stubbornness, headphones and a kick arse playlist. It’s not enough, but I can get by until my pre-planned day off. I hope. I will hang on by my fingertips until my day off and hand out gold stars all the way.

Until then, I will dance this broken body of mine to school. I’ll be grateful I can do it. I will thank this poor old bod of mine for rising when she didn’t want to. I’ll treat myself to a bath at the end of the week. I’ll keep up my meds and check in for a physio sesh. I’ll do all the back ground blah blah blah it takes to face up to each day. Because as much as I argue and roar and cry and scream with frustration sometimes, I’m still here. My body still works. My brain is firing on most cylinders most days. What more can I ask for? It’s a bad day, but I’ve had worse.

So this week I know I’m asking a lot. I know there’s a physical list of consequences, some I’m getting ready for. Some might be a surprise package. I’m borrowing from Peter to pay Paul, but I just really want to be here. It matters to me.

So Fibro, with respect, please back the fuck up and just let me have three days. Three days, and then you can kick my arse for four.

As always for me… when in doubt – dance. Get em headphones on and boogie my arse into the car.

I can.

Or I can’t.

But I’ll still try.

Stay weird peeps,

X Bon

Is the Apocalypse here already?

I never apologize for not being around on my blog much. Such is life.

And I’m still not here, here. But I’d do love being here. Which is cool with me. I checked.

I just have a puppy story I think is worth reading if you want a little grin on your face as you go about your day…

So today I have gotten up, dressed and promptly gone back to bed. Bed is good. I’m not sorry. But I do have to adult just a little bit today.

So I go outside to take off Little Old Nikki’s pajama’s, do some brain training with Crowley Puppy and feed them brekkie. After which Crowley got up to show me her bestest trick yet. Ready? It’s pretty great. It’s actually what woke me up this morning, but I just thought the world was ending and ignored it.

Crowley is proud to present —-

‘How to entertain yourself when you’re human is having a slow morning’.

Drag a half empty 20L water joey from Coles up the stairs… boom-boom-boom and then throw it back down again rumble-rumble-crrraaasssshhh.

She calls is ‘Random Apocalyptic Noises Using Household Items’.

She’s pretty proud.

I mean she sure knows how to find joy in recycling. And she’s using her imagination which is what any parent really wants to see in their kids.

Gotta love dogs. They have endless amounts of goofiness! And she’s shares all her achievements with me so I don’t feel left out. She’s pretty much perfect… to me anyway.

So good morning world! Glad that wasn’t the apocalypse after all. Carry on about your business.

I’ll just be over here. Hugging my dog.

X Bon

P.S Crowley was really worried when I said I was going to put up a picture of Nikki too.

Because we luvs her and donts wants the world to think that she doesn’t even knows how to chews up her bed.

I said it’s ok Crowley, we all have different hobbies. No one will think any less of your ‘little’ sister. Promise. 😉💕🐾

Down and Up

It’s been a rough week. Fibro is kicking my butt cos apparently it hates any sort of weather change… and it chucks the biggest tantrum if that weather change is Winter!

But it’s been good to go down. Because then I know I can and I WILL come back up again. Even if it’s tough and really sucky and it makes me literally cry… I have to know I will come out of it.

This is not going to be a long winded post, cos frankly I don’t have the wind for it! It’s just a post about a shitty couple of weeks. It’s about knowing it’s ok not to be ok. And not just because that’s a really catchy phrase. Because it’s true.

So, I’ve been properly down for 3 days straight, which isn’t that long physically, but Ive been feeling it loom for a couple of weeks… and that plays havoc with me mentally. Because when my body says ‘lie down and don’t move’! And my brain says ‘shhhhh you’re so tired you can’t speak English, time to sleep’…. it’s really fucking tempting to give in and let lovely lovely depression take the wheel. Because if the Black Dog takes over, I promise you I will sleeep. For daaaaays. And probably enjoy it.

BUT getting that beast leashed again is too damn hard.

So I get up. I feel out my bones and ask them if it’s a dancing morning. It is! Oh hells yeah!

I grab my big arse head phones. The ones that mean I can’t even hear my own pulse or breath.

I make my bed as I get my feet under me and start to pump up the music.

I listen to three songs.

1: We’re Killing Strangers by Marilyn Manson

Because it has a wicked fucken beat and he can soothe the angry beast. I can’t dance for shit, but I do anyway. And my body doesn’t move the way I’d like it to… so I’ve taken to doing a sort of interpretive dance. It uses all my muscles, it’s bang on the beat and it feels really good. I may look like an electrocuted pidgeon, but I feel as powerful and Childish Gambino.

2: Better Son/ Daughter by Rilo Kiley

Ohhhhh yeahhhh. Let’s bring it down, take it in and streeeeetch it out! This song gets under my skin in the best way. From the outside this sounds like yoga. I LOVE yoga, but again my body dictates what we do today. I’m cool with it, you silly old thing. So I take this bod o’ mine through a heavily restricted/personalized stretch sesh. And it feels gooooood. Take that OT, I AM doing what you suggested! Just… in my own way. Gold star!

3: Why Can’t I Touch It? By Buzzcocks

This one means it’s time to get up before I fall asleep on the floor. Get my inner, slightly less spry, Punk Bitch up and moving. Put the kettle on. Help my very old cat Nev through his morning routine.

I have to act like an adoring butler during this, or he gets offended and won’t eat. And I have to keep the other cats away from his food without making it look like I am. Oh, and give him privacy but be ready to open the door because after food comes the enormous need to evacuate… I won’t go into detail. Let’s just say we both regret it if I’m not paying attention.

I move through the house while the kettle makes it’s racket, just checking everything is ok, cos I’m gonna crash out in 5, 4, 3…

I make my cuppa. Tea should be made in calmness. I settle for raging loud mindfulness. I do it while I boogie to whatever comes next on my headphones. Then I sit. One must have 15 minutes to sit with a cuppa. Which is drunk black in case the sitting takes a bit longer and I need to nuke it hot again. Or drink it cold. Whichever.

And now I plan my day. My neck is saying NO MORE GIANT HEADPHONES! My heart wants to run and run. My aching body and says Calm Down. So we’ll get dressed, this oddball team of broken brain, bad ass chic and failing body. I’ll get us under the heated blanket. Bark up the laptop and do… something.

Or read.

Or watch Netflix.

Or wander around in the internet for a while, hug the cats, wait for the pain to fade.

Cos it’ll fade. If I’m careful, patient and work on not going crazy while I wait, it will bugger off long enough for me to walk the dogs. Or go to a market. Or whatever. Just be a big, pink haired weirdo outside in the world for a bit.

Not today. Maybe tomorrow. You all know how I feel about tomorrow… 🎶 🌞

Do you have Annie singing in your head yet? Has she done that bit where she says… The sun’ll come out… tomorrow? It’s so good. Oh, ready for my favourite part… You’re always a daaaaayyy awaaaayyyyy!!!!!!!

Hope you have that stuck in your head now. You’re very welcome.

Hoo – roo peeps,

Stay Weird,

X Bon

Rise Up

I’ve been listening to Andra Day’s song Rise Up on repeat lately…

(Click link to hear it in YouTube)

Because as Winter gets closer my fibro flares up, and so does my anxiety. Winter blues is a real damn thing. Especially if you have mental illness and chronic pain battling it out for attention!

So. I wake up. I stretch. I feel which part of my body is giving me the shits the most. I rise up. I make a cup of tea. I get dressed. I listen to music in my head phones, chuck the heater on aaaaand stretch. Move through some basic yoga moves. Test my memory from my PT stretches and go through as many as I can.

Move to a faster track and dance. Shake out these cold bones and aching muscles.

I might read. Visit a friend. Write. Hell, I might call my mum or just veg out on the couch.

Whatever it is, I find the happy thing and do it. Because I’m motoring along ok right now. But that never lasts.

So I focus on the joy. Which you can find anywhere, if you’re willing to look for it.

You can find it strolling down the street at a bus stop.

Or taking the SUV for a squirt down a muddy track with the dogs.

You can find it when you hit jack pot and take home a crochet blanket from the local Sunday market.

Or while watching Picnic at Hanging Rock on Foxtel and being swept away in nostalgia. Seriously, that show is like walking through poetry. Stunning visually and fans of the book will adore it.

You can find it sitting in front of the heater, thinking about reading a book, but really just lounging with the cats.

Or trying to do some work, but getting distracted by how cute the pup is when she snuggles with the grumpy old Nikki dog…

Or in photo’s of a rainbow neon city tunnel texted to you from a cousin…

Joy is in the small stuff. You gotta store it up.

Like a layer of blubber protects a whale through winter, so too will a layer of happiness be a cushion against bad days. And really bad days. Store up the good so you’re strong AF when the bad comes ‘atcha. It’s just good practice.

Trust me, I’m a Doctor.

Well, ok, I’m not. Just a mouthy chic who’s been on this tightrope now for nearly two decades. Yep. I’m old as hell. Ok, I’m still this side of my mid 30’s. But I got some mental health miles under my belt so just trust your local crazy lady ok? Layer yourself up in joy. It lasts longer that way.

Stay weird peeps,

X Bon

The sun will come out…

When the nights are long,

Listen to a song.

Because…

You can say hello darkness my old friend, and ask to go somewhere only we know, or admit that you’ve been waiting, and admit that sometimes your heart beats so loud you can’t even hear the beat.

You could get out of bed and be dancing on your own, you might know you’re beautiful just the way you are. Your doubt could suddenly go away somehow, even if you die everyday waiting for… something. Because every hour has come to this, one step closer. When you realize your eyes still smile from your cheeks and your heart could still fall in love in mysterious ways.

Tonight I’m thinking out loud. And I want to know that even though it’s based on your smile and I’m betting all of this might be over soon, please take what’s left of this heart and use only what you really need.

I can tell that I need to let it fade. So why don’t you be you, and I’ll be me and we’ll all be ok. Someday.

Because even though you had your maps drawn, and every road they led you down felt so wrong. You’ll be ok. Even though you’re scared, you’re stronger than you know.

So let something wild call you home.

Remember that the sun will come out tomorrow. All of this is one long hallelujah, and even though your faith is strong, you needed proof.

And you will find it.

Tomorrow.

Because baby I been here before, I used to live alone before I knew you.

All of you who make this trauma beautiful.

You keep my post traumatic bearable.

So fill your head with the ocean, fill your head with the sea, and dream of sailing with me.

I’ll pull you closer to my chest. Because I knew I loved you then, though you’ll never know.

Just say you won’t let go.

I am not the only traveler, who has not repaid his debt. I’ve been searching for a trail to follow, again. So then I can tell myself what the hell I’m supposed to do.

Take me back.

And meet me in tomorrow.

Where the sun will come out, and you can betcha bottom dollar that we’ll be ok.

Because I’ve had that dream a thousand times. A thousand times. I’ve had that dream a thousand times. My eyes are red, the streets are grey… but…

We will be ok. We will.

Just stay. One more day. Then another.

Please.

💙 Bon

Songs/artists/albums used hash tagged below…

#hellodarknessmyoldfriend #lilyallen #somewhereonlyweknow #lisamitchell #valium #kinagranis #christinaperri #edsheeran #thinkingoutloud #jackjohnson #cocoon #jamesbay #letitgo #somethingwild #thesunwillcomeout #tomorrow #kdlang #hallelujah #beautifultrauma #postraumatic #whenyoudream #lordhuron #thenightwemet #sayyouwontletgo #a1000times

Just be there.

Facebook! You’re sharing golden memories lately. Loooving that feature!

Here’s what Facebook showed me today. Still a great memory.

Still excellent. I’m not currently sick or in hossie, but we all know how hard it is to visit a non verbal or seriously ill friend. It can be awkward for both of you. So read that book, stick that damn note to the front in sticky tape. Tell the person you’ve come to see them, you can see they’re not well, so you might just sit down for a bit and read to them.

Kindness is in the little things.

It’s better than staring at an awful painting or god forbid, talking about the weather… (I actually really enjoy deep discussions about the weather. Types of clouds, the rain they produce, long range weather forecasts, weather changes and patterns and even historical data, coldest day in 23 years… but I digress).

You are the highlight of my day, no matter what happens. Sit for a bit, hold my hand, throw grapes at my head until I wake up. Read to me. Pull my finger. Flash a nurse. That’s always fun. Just be there. If you make me laugh that’ll get you 10,000 bonus points. But the best thing is? You came. You saw. You were there. You were escorted from the hospital for public nuisance and hilarity. This applies to bedside visits at home too! Although maybe skip the flashing. We can’t be teaching the children bad habits now.

X Bon